Once you start, you can't stop ...

#round 8 of chelation week (19th Nov -22nd Nov) :-

##round 1 on ALA 5mg

ALA is known as Alpha Lipoic Acid.

ALA detoxification is effective for the removal of mercury and arsenic from the brain, which means to use ALA as the chelator, it will cross the brain barrier and pull these toxic metals out.

DMSA, on the other hand, does not cross brain barrier and is only effective for the removal of lead, and assists in the removal of mercury.

The reason why parents are advised to do one chelator at a time, during the first few rounds instead of doing both at the same time, is so that they would know how the child reacts to each chelator -the symptoms and such so in future, the parents can pinpoint the problem to the main cause.

We chelated during weekdays again because I find this arrangement sort of works better for me, and I get to rest during the weekend.

During the first day of ALA, the first initial feedback of mine would be I felt that Jaden did better on DMSA (first day) compared to ALA.

He was also constipated on every first day of chelation lately, including this round on ALA.

Jaden was not focusing as well as he did too on DMSA days. He seems to have less eye contact, and always in a daze.

Red dots, which I believed might just be the toxic exiting his body, started appearing randomly near his thighs and crotch area. He, too, started scratching his butt due to a few red bumps appearing over there.

There was an increased of verbal stimming and jumping too. He was just stimming away verbally and hopping around like a kangaroo.

There was also an increased of Jaden licking his palm after touching things, be it the wall, the grill door, whatever that he wanted to feel, he would feel with his hands, then onto his tongue.

ALA seems to have him waking up at nights, when he usually do sleep like a log throughout the night. Somehow, night feedings this time round weren't as smooth as it was supposed to be. He seems to have this sudden crying outburst (somewhat as if he had a nightmare).

Though he was constipated on the first day of chelation, the next two days, he actually have well-formed stools coming out from him, and they seem to not be as smelly. I know, shit are all smelly but the parents that shares the same experience as I do, will know what I am talking about when it comes to the level of smelliness. 

I triggered the second day poo by giving him the Oxycleanse supplement. That supplement do come in handy but if I could choose, I rather give natural laxative inducer such as juice, fruits or vegetables.

Supposedly, metals get excreted out in stools when one chelate using ALA, whereas metals are excreted through urine when using DMSA.

The positive side to the ALA dosing is that I did not see any yeast flare-up compared to him on DMSA.

In fact, I even gave him a shot of 0.04ml of MB12 injection on 21st Nov. I must have done it right because he did not show signs of hyperactivity.

That was my first time injecting his butt after a looooong hiatus that both Mr and I tried on him earlier this year. 

However, the successful injection on the first time did not go well the second time I tried. Instead, the needle bended and I got pricked instead. Guess I still need to figure out how to do it fast and steady on the little cow of mine. 

p/s: to understand what I am doing, do read this . =)

Do you know the works of Calcium and Magnesium?

WHY CALCIUM AND MAGNESIUM AREN'T ALWAYS THE BEST OF FRIENDS

Magnesium competes with calcium for absorption and can cause a calcium deficiency if calcium levels are already low.

excerpted from :-
http://www.umm.edu/altmed/articles/magnesium-000313.htm#ixzz2CGuMsrrO

Most people take it for granted that calcium and magnesium are good for you.

In many ways these minerals are very important; your nerves and muscles depend on them.

Taking too much calcium, or using the wrong form of calcium, **TUMS for example, may lead to kidney stones, bone spurs or calcifications.

Calcium does not work alone in your body. It requires vitamin D, parathyroid hormone and healthy saturated fat in order to be utilized for strong bones, teeth and muscles.

Bone health not only requires calcium, but an array of other vitamins, minerals and hormones to complete that process.

Magnesium is a critical mineral for health. Magnesium is necessary for some 300 reactions in the body, it is used by every organ in the body, especially your heart, muscles, and kidneys. It contributes to teeth and bones as well as activating enzymes, contributing to energy production, and helps regulate calcium, copper, zinc, potassium, vitamin D, and other important nutrients.

Intestinal flu, stomach and bowel diseases, diabetes, pancreatitis, hyperthyroidism, kidney malfunction, and use of diuretics can lead to low magnesium levels. Too much coffee, soda, salt, alcohol, excessive sweating, and prolonged stress can also lower magnesium levels.

Low levels of magnesium may lead to agitation, anxiety, restless leg syndrome, sleep disorders, irritability, nausea and vomiting, abnormal heart rhythms, low blood pressure, confusion, muscle spasm and weakness, hyperventilation, insomnia, poor nail growth, seizures, migraine, asthma, allergies, fibromyalgia, ADD, and nervous disorders.

Foods rich in magnesium include unrefined grains, nuts and green vegetables. Green leafy vegetables are particularly good sources of magnesium because of their chlorophyll content.

Calcium should be taken during the day. Magnesium is best taken at bedtime for better utilization and better sleep. The reason for this is that calcium is antagonistic towards magnesium, as they act biochemically to cancel each other out.

**TUMS is calcium carbonate. This can lead to an imbalance in the blood’s bicarbonate buffering system which may undermine your health.

excerpted from :-

http://blog.seattlepi.com/naturalnotes/2009/09/01/magnesium-and-calcium-arent-always-the-best-of-friends/

Andy Cutler Chelation Protocol #Round 5

12th October 2012  (2pm) - 15th October 2012  (2pm)

Just that when I thought I had just successfully finished my #round 4 with Jaden and was looking to a few days rest before I begin chelating again, it was Friday again and there I was, sitting at the dining table, cutting up dosages and dividing them onto the folded paper.

I am surprised that I was eager to chelate him this weekend, despite lacking of sleep. The goal I set for both Jaden, 5 years, to see if we can actually feel the light and if God allows, for us to reach that light at the end of this long dark tunnel. 

It gets easier once you pass #round 1 or maybe #round 2, when you finally, somehow created that every 4 hour dosing schedule.

This time round, I had a scare on Saturday morning. Partly my fault for trying to be hero and thinking that even if I clocked in just a few hours of sleep, I would be able to wake up as soon as the alarm goes off and quickly get the DMSA into the syringe and *touch wood* successfully syringing it into his mouth without waking him up. 

It was raining, that Saturday morning. In fact, I think it had been raining for quite some time and everybody knows, its the most perfect weather to sleep in, under the warm covers.. and that was what I did. 

My alarm went off at 950am, and I thought I would just sleep 5 minutes more.. the boy was actually awake by then, and was giggling and playing. 

I really thought that with him moving around the bed like that, giggling away, I would be able to quickly jump out of bed in 5 minutes and get the DMSA ready.

Well, I did jumped out of bed very very QUICKLY... when the clock showed 1040am.

HIS DOSING TIME WAS SUPPOSED TO BE AT 10AM

I TOTALLY MISSED THAT 1/2 HOUR WINDOW ALLOWED ...

so I panic, yet I didn't want to abandon round, thinking that 5mg is still really very little and that I was just 10 minutes late from the allowed window.

So holding that thought, I fed him that DMSA and then panic and stressed myself silly after that, not knowing if I had done the right thing, or I need to abandon the round this weekend because of my greed for 5 more minutes. 

I quickly send out SOS messages to experienced parents, online, sms and calls. 

*phew* turned out that I did the right thing and that my effort thus far was not in vain. 

One that has not gone through this over-sleeping act, will never really be able to phantom that exact feeling I had. 

I thanked the parents who replied my SOS messages.. and found it funny that I could not type " You have no idea what I have just been through.... :)"

I am sure almost every one that replied me had gone through that oversleeping moments and panic as much as I did. This is the type of unnecessary stress I need not, in addition to the lacking of sleep. :p

Seems that Jaden is good on this round too. The obvious signs of him having his yeast flaring up, are his sudden break into giggles and hyperness. *sigh*

Round ended at 2pm Monday and he was pretty fine, throughout the day... and then it all began, the   bad off-round moments.

Started early this morning, when he didn't sleep through the night soundly like what he usually does, waking up at 6am-ish and cried and cried and then played till about 8 before he got a stroke of cane by me and he fell asleep rather fast after that... and the bad behavior mode on, hyperness .. oh boy...

Will most probably be taking a break off chelation for next week and begin the week after... maybe this time I will try using ALA and observe if Jaden will behave much better on ALA alone.

Andy Cutler Chelation Protocol #Round 4

This week, I started my round at 10pm Friday, 5th Oct, after I got a confirmation from Mr that we won't be heading down to Melaka for the weekend to visit my mother-in-law.

I was actually hoping we won't go so that I could really carry out this chelation round. I already had a break with Jaden last week, for his 5th Birthday weekend and also both of us were not really feeling well, with the cough and all but this week, both is fine and knowing me, if I procastinate this week's round, I don't think I will be feeling the momentum to want to carry on as often as every weekend anymore.

*touch wood*

Jaden is rather well behaved on this round. I added in OmegaBrite, that reached from US through a friend to, so on top of the cod liver oil he takes daily, now, its an additional OmegaBrite once a day. I am going to monitor how it goes with his behavior and learning development, and see if I can push it up to 2 Omegabrite a day, then to 3caps daily. Supposedly I will be able to see some results in 2-3 months if taken daily. 

Jaden is taking the OmegaBrite gelcaps. Everything is so much easier now that he can swallow capsules although he has his moods, at times trying to runaway from supplement time but he will still take them in the end after some persuasion. 

" OmegaBrite's is 3x more concentrated than standard omega-3's and highly purified to 90% omega-3. Only OmegaBrite contains 70% EPA (eicosapentaenoic acid) in a 7:1 ratio of EPA to DHA (docosahexaenoic acid), preferred by physicians at leading academic centers world wide. EPA is the body's natural, anti-inflammatory molecule and provides a natural balance to Omega-6 Arachidonic acid. Both are essential for health. One tiny OmegaBrite 500mg softgel capsule supplies you with pure hexane free 350mg of EPA Omega 3 and 50mg of DHA omega 3 with no aftertaste and no drug like side effects."

I am starting to see yeast flareup too, although not very much in behavior, its more like red tiny bumps appearing here and there on random parts of his body. We are still currently on 4caps Nystatin and 4drops of OoO daily when doing chelation.,

Supplements taken during this time round's chelation:-

• Before breakfast - Digestive Enzyme, Candidase, Trienza
• During breakfast - Cod Liver Oil, Omegabrite
• After breakfast - Magnesium Glycinate, CoQ10, Folinic Acid, Ester-C, DMG (w/ folic acid & MB12), P5P, Silymarin and 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• 2.5 hrs later - Zinc Picolinate and Factor 6 Probiotics
• During one of the doses for chelation, I add in 2 drops of OoO together with his DMSA
• Before lunch - Digestive Enzyme, Candidase, Trienza
• After lunch - Magnesium Glycinate, Folinic Acid
• Before dinner - Digestive Enzyme, Candidase, Trienza
• During dinner - Cod Liver Oil, OoO
• After dinner - Magnesium Glycinate, Silymarin, Ester-C, 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• Before bedtime -Zinc Picolinate, Factor 6 Probiotics

I am just wondering if I am giving Jaden enough minerals to make up for the ones he is excreting out with the DMSA...

Jaden has been having a good daily bowel movement, only that at times its nicely formed, sometimes reallyl smelly and mushy soft diarrhea like .. but as long as he does his Number 2 daily, I am pretty fine with it.

After a week of a persistent therapist who insist that he feeds himself his own dinner everytime she is here, he has learnt finally how to feed himself without any help from me. These days, I only sit with him and watch that the bowl of rice does not fall over the table but he is doing the feeding himself. Still messy of course.. which one would find bits of rice scattered all over the floor but I am not complaining. At least he is feeding himself and wants to be independent

Jaden is being much more choosy now, he is starting to make his own choice of what he wants and doesn't want. A good thing yet a bad thing when it comes to avoiding tasks but his team of therapists sure do have a way to make him complete tasks even if he didn't like them.

As for me, he sometimes challenge me, when he is not supposed to be doing something and I say no, he will purposely climb up faster or just not budge from where he is but there is nothing I can't solve with my bestfriend, Mr Cane. I have 5 bestfriends in the house, you see :)

This chelation round ends on Monday, 10pm, 8th Oct. Probably I am going to give him 1/4caps of Adrenergize on Tuesday morning to make sure his mood is stabilize.

By the way, I started gving him 1/4caps of Adrenergize two days before I started chelation with him as his mood was so foul, the Phospatidylserine did not work its magic on him anymore. Somehow, the 1/4caps of Adrenergize worked fine, giving me good boy behaviors. 

Andy Cutler Chelation Protocol #Round 3

Today's #round 3 of AC chelation ended at 10am.

I started my #round 3 @ 10am last Friday.

I was really inspired to carry on doing it this weekend (21st Sept -24th Sept) despite from the negative behavior I had from Jaden the previous week.

Surprisingly two days before I started on this #round3, I discovered that Phosphatidylserine was a magic pill. At least it was to me.

It was prescribed to Jaden by Dr Erwin back in June 2011 but I never got round to giving him that supplement after all the other supplements that I had been slowly giving him on Dr Rina's prescription and trust me, there were just too many that I felt sorry for the boy so I was keeping it at the most minimum and also the ones that are the most important. 

I remembered reading about Phosphatidylserine in the Fight Autism and Win book, that it does wonders for mood. Ok, maybe I am exaggerating about the word wonders but what the book wrote was actually 'improve concentration, focus and mood, modulate cortisol lever @ 100 - 200mg per day and the softgel I had from Dr Erwin's clinic is 500mg (derived from soy lecthin) but it was a risk I am willing to take as the book claims the positive reaction and the note on the bottle by Dr Erwin to me was it was for neurological. So why not, right?

AND... it was MAGIC!

His therapists commented on his behavior for the two days he was on that magic pill that he could sit longer, level of concentration is back and that he is so different from the past two/three weeks they had classes with him. It was a total 360 change in Jaden's behavior. 

I did not give it to Jaden on Saturday or Sunday. He was a bit naughty but nothing that I could not tolerate so it was all good. 

These two days, last night and today, he was rather weepy. On and Off he would cry for no reason but then again, I am also weighing in other possibilities that might not be the doing of DMSA but the food he ate last night. Either the rice last night or the gfcf cake he had for trial run. Going to monitor again tonight for the cake after his dinner because with Jaden, reaction to food allergy is almost instantaneous. 

I am so glad that this round is over and I shall be taking the next weekend off as its his birthday this coming Friday. Now, its back to catching up on lost sleep for me  :)

Swallowing capsules

I can proudly now say my almost 5 year old can swallow capsules. 

Yesterday, while we were all ready to have our dinner in Melaka, after paying my mother-in-law a visit, I decided to try my luck by just giving Jaden his digestive enzyme just like that, without having to insert it into bits of oranges (like how I do it at home usually) and he surprised me by just swallowing it and quickly sipping his water after that.

So, to test Jaden further that it is just not a coincidence, I tried again with his Trienza in between his meals and he did it again, and again for other supplements. 

Conclusion, YES!! Jaden can swallow capules now and these capsules are exactly small or tiny. You can imagine how happy and proud I am of Jaden.

BUT this success did not come easy.

We started our biomed journey back in Nov/Dec 2010 and the first year we were on biomed, it was a battle each day trying to get those supplements into his body. Both Jaden and I were both constantly crying and fighting. Him crying because mummy was being a crazy lady forcing him to drink up all those bitter stuff and mummy crying because Jaden really put up a good fight and daddy was on his side instead of mummy's. I was called crazy, I was accused of traumatising my own son ... *sigh* yes, I have been through lots of those moments but I stuck through my own method and look at us today.

I have to admit, it had never been easy.

I was a very forceful mom. I would cane him until he finished up the drink, I would shove the pieces of fruits with half the capsules in and block my palm at his mouth so he can't spit it out and have to take it all in. Yes, during those days, he gets caned quite a lot... and as he grew up, getting used to the idea that if I take it all in without a fuss, it would be all over in a minute or two. 

First I started out having to open up all the capsules of the supplements and mixing it into his drinks. Fruit juices or his potato milk to mask the flavor although I do have to admit that some of these supplements are just plain nasty and imagine he has to drink it all up. 

Then I started sprinkling out some of his supplements into his bits of fruits such as persimmons, mangoes, watermelon. Sweeter fruits to mask the overall bitter taste. Sometimes it works, sometimes no and he learnt that these fruits are 'bitter' too and he started to refuse taking them.

I figured out its time I have to try another method to get it all in again. I almost gave up after a bad fight over the supplement intake issue, and I gave it a rest for quite some time before I told myself, its now or never for Jaden to recover. If its not me to do all these bad cop job, who else would be willing to, right? 

So I tried again, this time, I only divide the capsule into half, their contents still in the capsule and I stick them into fruits like bananas and mangoes and mandarin oranges. This, I only started doing back in December/January of 2012.

It worked fine until he decided that he didn't like them in his bananas. Maybe that needs a little effort more in swallowing them as he needed to chew a bit and that made him bit into the bitter contents. So I stuck with mandarin oranges which he just can't simply refuse. 

From there, it was the whole capsule in half a slice of mandarin oranges and then I break the slice of mandarin oranges into three parts and one slice of mandarin oranges equals to three different capsules. 

and today, well, no more mandarin oranges !! YAY !! 

Most probably I would only let him swallow on the whole and plain like that when we are travelling but when we are at home, I am still going to give him with the bits of fruits so that he won't get scared of swallowing capsules just like that. HEY, even I get scared when I see 8 different pills staring me in my face daily.

I am just thankful and grateful that 'today' came. =)

Off rounds

Jaden's mood was pretty unstable.

He would have an upturned mouth, quivering ready to cry ... refusing to do his work and screaming his head off at his therapists. Lots of pinching, stubborn and the frequent pee-ing too. 

It seems that he has more pee than usual and have to go rather frequently, something which does not happen often. Its almost like he could not control keeping it in until he reaches the toiletbowl/potty. 

Of course, that took place yesterday after his last dosage of 5mg DMSA at 330pm. 

I also noticed that he has a fiery red ring around his anus, which I had made quite a big effort in clearing it all up before I embarked on this chelation journey and here it is, flashing me in the face the bright red ring! 

This is due to yeast usually, and that I can totally understand as he has been giggly during the chelation weekend. So, now, its back to combating yeast again before I go on my #Round2. 

Jaden has also been teeth-grinding these two nights, and extra loud last night. So I am going to retain his double calcium intake for about a week and see if the teeth-grinding issue would go away. 

There is a belief that if the kid is heavily metal-toxic, they tend to do better on rounds and then get a little cranky when they come off the rounds. So, no prize for guessing which group Jaden belongs to ...

Poo, however, was good so far. It should be in the number 3 category of the Bristol Stool Chart. *phew* Its always better out than in -constipation can make Jaden a difficult boy to deal with most of the time. 

Andy Cutler Chelation Protocol #Round 1

Finally I summoned enough courage to re-start on #round 1 chelation for Jaden. 

Took me over almost a month and more to get my ass on dividing the doses, prepping my body and mind to be mentally strong enough to go through the difficult two dosings of the entire process. 

I was not worried about Jaden not wanting to take his doses when he is awake because I feel by now, after two years of asking him to come to me and getting supplements, medicine and bitter stuff shoved down mouth, he has learnt that its easier to quickly swallow it than to put up a fight with me. He never wins at that. Maybe not now when I still have the upperhand in parental control.

Like I mentioned earlier in this post, because we are just starting on our very first round, Jaden will only be taking 5mg per dosing every 4 hours for the next 72 hours. That would add up to 18 doses altogether. 

Minimum advisable hours to do would be 64 hours each time on a round. That is personally up to the parents as these kids are usually school-attending children and they have no choice but to do that. However, the ideal recommended hours would be 72 hours, and that is what I am doing with Jaden.

I have got my hands on a 25mg DMSA.

Many would be scratching their head over DMSA right now, aren't you? DMSA stands for Dimercaptosuccinic Acid. I am not going to explain further as there is always Wikipedia to do the job but to summarise it, its a chelating agent where it helps bind toxic metals in our heavily metal laden children. Research shows that most of the autistic (spectrum) children do have lead or mercury or both poisoning in their blood level. It is like detoxing our children from lead, mercury and some, even arsenic. 

Chelation is not a one off thing as these toxic metals do not get in there in a day, but was accumulated since don't know when so this chelating process would also take time to push these toxic out of the body. There are cases where some are completely 'recovered' and some, reaches a stage where nobody would once believe they were autistic and this is what I am aiming for. Of course, RECOVER is on my mission list, be it that this procedure might take a few years but if there is light at the end of the tunnel, I will march together with Jaden towards it. 

I would most probably do at least 5-10 rounds with just 5mg DMSA and then increase another additional 2.5mg to the 5mg. That is the step to take, it seems, as written in my book of AC chelation bible book -Fight Autism and Win. 

Then there will be ALA adding in, which ALA crosses the brain barrier and bla bla bla, but that is another story to tell next time when I start adding ALA to his DMSA but for now, lets stick with DMSA first. 

SO the story is...

We re-started our #Round 1 AC (Andy Cutler) chelation protocol on Aug 3, 2012. 

The first two days were a breeze through as I did not see any meltdowns, signs of fatigue or yeast flare-ups. DMSA are known to trigger yeast flare-ups despite one is on a anti-yeast protocol before, battling out the yeast. 

Jaden had two poo incidents, once on Fri evening and Sat morning, where it was mushy, mustardy, diarrhea-like, just non-watery though kind of poo. He took another dump on Saturday evening and it was well-formed by then, and it was in a rather healthy looking color -based on Bristol stool chart. I bet you didn't know that there was such a chart, didn't you? So did I, until now.

Yesterday, Sunday, nonsense started. In the evening, after dinner, Jaden went into his giggly, euphoric mode. That was when I started to panic. Yes, yeast army has arrived and started partying. His poo? Well, it came in two colors, well formed but one was nearly tar-liked in color. That could only mean bad news, indication of something not right inside there.

Other than being giggly and all last night, he did display some positive signs such as being a calmer boy than usual, much cheerful. 


Oh, I forgot to mention another downside, he was stimming much ore, flapping his hands and that also boils down to it being caused by yeast. YES, we parents like to blame em YEAST !!!

Before I started out this round, I was only scared of the two dosings that requires me to give it to Jaden when he is sleeping. Remember how I failed the last time round because he put up a fight with me the last time round on the second night of dosing and I have to abandon round? 

Well, it seems by my endless effort trying out various ways (during that one month break), I practiced trying to open his mouth when he is sleeping whenever I could and FINALLY, I think I may have found THE SECRET to it, without waking him up and also getting those doses in. I shared it with one parent I met up last night and she text me late last night saying it worked with her son too. 

*PHEW*

BUT do let me stress. Every kid is different. They have different sensitive issues, for Jaden, it was his lips. If you touch his lips, it will stir him up from sleep and make him angry and that was what that caused my previous abandoned round. 

Speaking of detoxifying this metals out from our children, some minerals get depleted too. That is why, during chelation, we crank up on their supplements. Jaden has to take double of his zinc, magnesium, milk thistle (just because I am a scaredy cat and wanna protect his liver all I can), calcium and probiotics. 

This is a 3days on a round, rest for 11days and then continue again on the next round. Each round is 72 hours, you should have get the idea by now though. Why rest right? This is because we need to let their body recover from all these detoxifying, build up again on their immune system and then go on a fight again. Even soldiers need to take a time out, to replan, regroup and refill their ammo before they can fight, right? Just like detoxifying, some will purge it out but you don't expect those purges to go on 24/7 for the next 365 days, do you? You would be jelly by then. So its basically the same concept. 

Some children's neutrophils are also lowered while on DMSA, so they need time to get their neutrophils to a safe range before they begin their battle again. That is why there are some that only does one round of DMSA once a month for their children. Its not about how fast you go, and that will give you success. Its how steady you go, how you do your rounds based on each child's health rate. Its a fight of course, a fight with time.. and that is all.. but aren't we all fighting against time for everything? Just that, this is rather a tough fight as each child's situation is different from another. Some might just need less than 100 rounds and they could be saying "Hallelujah", some may need more time and rounds. 

Whatever it is, the motto is never to give up ... 

One and half hours more to go before his last dosage of DMSA for this #ROUND 1.. and I can successfully say, 

YES I COMPLETED A ROUND ON MY BABY BOY !!!!! 

and damn, I deserve a good glass of wine to celebrate ! :)

p/s: This would mean I took another baby step forward. YAY !!!!!

Observation

Although the AC chelation #round 1 was abandoned early today after my attempt to dose at 330am, there are still a few observations that I would like to share while Jaden was on the round.

Jaden was much more calmer personality wise, compared to his normal days of tantrum that sparks off easily.

I felt that his mind was clearer and that he understands more or finds alternate ways to communicate his desires/wants to us in a more effective way rather than just being whiny and pulling or pushing, which he usually would do.

Eye contact was superb and he seemed really loving, hugging and kissing both Mr and I whenever he can, or feels like it. It was as if he was doing it appropriately and according to how he feels, instead of just doing it when we ask for it. :)

I am not sure if this was due to placebo or it really happened but I do see positive improvements in Jaden when he was on the round. 

This concludes my observation on this FAILED #round 1 of our AC chelation experience. 

#Round 1 - FAILED / ABANDONED

Everything was going so well, until the 330am dosing on Saturday night. 

I don't understand, he took it so well the night before but last night, he put up a fight and only had a bit of DMSA in him but spit most of it out and I did not know what to do? 

Its not like any other supplement where they have it half, and half out and you can still re-feed them them supplement again until they take it all in.

So I decided not to take the risk of overdosing him and decided to abandon this round. So, the next time you see me saying I am on Round 1 chelation again, that is because this is a failed round, its not considered a round. 

Come to think of it, that I had just finally figured out the right dosage for antifungal for him after all the giggling episode from his third dosage and now, this failure from my side.

For now, I need to figure out the right trick/moves to give it to him without him even realizing and sleeping on.. gonna be rather challenging, this one for his mouth is so shut tightly when he sleeps, not to mention even after I make my way past his tight-shut mouth, I have to fight the battle against those clenched teeth. *sigh*

Even during the first half days he was on his round, he had displayed some positive behavior and he also seemed rather pleasant, he was even more aware, alert as you can call that and the eye contact, it was wonderful !!

I feel like such a failure like now but I shall console myself that I was very sick. Next round, I shall be more alert and 'tricky' during those night/early morning feeds. 

So, conclusion to my much-anticipated round 1 of AC chelation = FAILED !!!

Day 1 # Round 1 on AC Chelation

So here I am, sitting in front of the computer, all bright-eyed, runny stuffed nose, nursing a rather bad sore throat which if I am not careful, Mr fever might just trail along to party and a headache.

Just popped two panadols and clarinase and downing as much water as I can and waiting for the next round of chelation dosing for Jaden, which will take place at 1130am.

Yes, so far, I have succeeded feeding it to him -330pm / 730pm / 1130pm / 330am / 730am ... This is how AC Chelation is like. 4 hourly dosing for the next 72 hours and then days off until the next Friday comes and we go on a round 2 provided Jaden is all healthy and shows no sign of being attacked by nasty fever/flu/tummy bugs. *touch wood*

He had been rather pleasant on the first dosage, that I badly want to believe that it is the chelation's doing.

Jaden was actually sitting down on the floor, crossed his legs by himself and he was sitting there for quite some time without getting up to jump and stim. It was incredible. 

Second dosing come, he was still pretty alright, seems rather aware of things and by the third dosing, he was all giggly. 

In a euphoric state of mind, I am guessing he was having a yeast flare up, so I am going to try to add in OoO together with Nystatin and see how it goes today.

It had been quite a crazy day yesterday, a little overwhelmed with additional supplements I have to make sure he takes and on top of that, drinking extra load of water than he usually already have. 

Imagine this..

Morning on an empty stomach, I give him 1 Digestive Enzyme and 1 Candidase (20-30 min before breakfast).

Trick him into bathing before meal, and then immediately after his breakfast, I give him 1 Folinic Acid, 1 Magnesium Glycinate, 1 DMG, 1 P5P, 1 Ester-C Bio, 1 CoQ10, 2 Nystatin, 2ml of GPC Liquid, 5ml of Cod Liver Oil (CLO) and a drink of 1/4teaspoon of Calcium Citrate mixed with drink. 

One half hour after, I pop 1 Humaworm in him and wait for another one half hour before I pop in 1 Zinc Picolinate and 1 Factor 6 (probiotics) into him.

Which gives me another one hour before I start on giving him 1 Digestive Enzyme and 1 Candidase again and wait for 20-30 minutes before his next meal.

After lunch, its 1 Magnesium Glycinate, 1 Folinic Acid, 2 Nystatin, 1 Milk Thistle and 1 Cognitive Factor.

30 minutes before meal time, another round of 1 Digestive Enzyme. 

After dinner, its 1 Magnesium Glycinate, 1 Ester C-Bio, 5ml of CLO, 1 Milk Thistle and another drink of 1/4 teaspoon of Calcium Citrate mixed with drink.

Nearing which, it would have been about 10something at night, one half hour after his dinner, I pop the second Humaworm in him, wait out for another hour or one half before I send him to bed with 1 Zinc Picolinate and 1 Factor 6. 

All those supplements, of course the four hourly dosing DMSA in between. 

Today, I have to figure out where to fit in the 2drops of OoO. If the 2drops 2x daily OoO does its' job in keeping the yeast at bay, then I shall keep the dosing at that. If not, then I will have to add on another additional 2drops after dinner tomorrow, which I will probably wait out and observe  first for today.

Speaking of which, I have yet to figure out and read back on his DAN's note on what supplement to give him to back his immune system up after doing a round of chelation. *sigh* 

On top of feeling a little overwhelmed with a sudden influx of the additional supplements, the 'badly sick' me have to be alert at all hours because Mr has ZERO ideas on what I am currently doing, giving Jaden and how to give it to Jaden. 

All I want to do is just to breezefully sail pass this #Round 1, so I can end this procrastination and move on a step closer to the light at the end of the tunnel. 


p/s: Crap, I forgot totally all about Epsom Salt Bath and applying gluthation transdermally. What an idiot I am !!

Chelation

Finally.. after nearly over a year of procrastination, I have finally cut up the DMSA into 5mg each for the coming next 72 hours.

God, please give me the mental strength to sail through the 72 hours easily with Jaden complying to taking the DMSA without throwing any fuss.

Got my other supplements ready on hand too that has to be double dosage from normal days. 

I can do this! 

For a better tomorrow, that is...

MB12 shot

MB12.

Whats that? 

It is actually known as Methyl-B12. You can read all about MB12 and its breakthrough (its not a cure but part of the recovery journey) with autism here. 

That was the first question that ran through my mind when I first heard of it and parents have been raving about how they see positivity from the MB12 shot and boy, was I ever ready to want to give that to Jaden only to be told that he is not ready for it until just recently, in February. 

We had the first MB12 shot administered by Dr E, as I need to know how to inject into that little butt of his and how much to give each time.

The first shot was 0.05ml, and that, unfortunately was done without the numbing cream, so it had Jaden screaming in pain for a little while and shooting us dirty looks as if we had wronged him. 

That, I saw a little side-effect that would have been better off, was hyperactiveness from my already a lil active boy. He was jumping up and down the couch by the time we reached our hotel room.

Getting back to Malaysia, and trying to get my hands on the needles, those really fine insulin kind of needles was pretty confusing when it comes to me trying to convey what I wanted from the pharmacist and she ended up giving me empty syringes instead. *slaps head*

Then a kind mother helped me get a pack of 10s when she was getting hers and finally today, Mr and I administered the shot on Jaden's butt cheek. 

Since I saw hyperactiveness on 0.05ml dosage, I reduced it to 0.02ml this time round. Shall see if it works on Jaden this time, otherwise, we just have to up the dosage. 

To not traumatise the boy, I applied the numbing cream on Jaden 20 minutes before we injected MB12 into his butt cheek. 

The only struggle and cries that came from Jaden was due to not liking me pining him down the bed while the father quickly injected him with MB12. He was alright soon after we let him go so I guess it was not a painful affair although the father was feeling all jittery and scared when he was holding the needle near the struggling little butt cheek. 

So for now, guess its just time for me to monitor him and see if there are any side effects and the second shot should be on Tuesday and then Thursday and then Sunday. 3x a week for now.. if all goes well with 0.02 for today, I shall try to up it to 0.05ml the next round.

Finally ! 

Prothera Ester-C Bio

That is the latest supplement that is added on to Jaden's intake.

Since today is the first day, its hard to tell my his stool performance. Yes, now, almost everything gets determined by how his stool is for the day and well, today reeks of his multivit smell and also mushy a bit diarrhea like, just not watery, thank goodness but still, ain't really something I like out of his ass.

The effects of his B6 is rather very noticeable from his sleep pattern. It seemed like his sleep is not as deep as how it used to be, when I had the hiatus. It sort of affects his father's sleep as well because the boy tends to wake up screaming. As if he had a nightmare or so, but just because he is unable to tell us, we just have to guess and well, some nights comfort him back to sleep, some nights ignoring him, hoping he will tone down his cries and sleep it off or well, the worst case scenario is when he decides that he has to kick someone off the bed, that is when he will receive the stroke of the almighty cane that will instantly put a stop to all the nonsense that was going on. 

What that irks me is the obsessive behavior that seems to hit him back. Knocking on chairs, opening and closing of the door and collecting things and putting them all on the bed. Its getting to the extend that is disturbing the norm of life such as having to have to fight for my own space on bed. What am I saying here? OF course, I always win the fight although I would prefer it not to be this way.

They suspect that his wrist strength has grown stronger, and that is why he now knows how to twist and turn the door knob to open and close the door. 

I always thought Ester-C was just like any other vitamin C and that Jaden needs to have them in him as sometimes he tends to miss out on his fruits and veges and there is so much vits in those food that might not be what his body actually needs. We need more! So Ester-C is the answer to our dilemma of making sure he is fully Vit-C certified! =)

Jaden is taking the Prothera brand -Prothera Ester-C Bio. The bio should stand for bioflavonoids. Whats that?? yea, same question as I had. 

Turns out that Bioflavonoids are:-

"Bioflavonoids are reported to have numerous health benefits. They are the natural pigments in fruits and vegetables.Researchers have reported over eight hundred different bioflavonoids. Most of these are the yellow pigments found in citrus fruit as well as other fruits and vegetables, these are referred to as flavonoids.

Some researchers believe that bioflavonoids help maintain capillaries. Capillaries are microscopic blood vessels that allow the oxygen, hormones, nutrients, and antibodies to pass from the body's bloodstream to individual cells. If a capillary's walls are too fragile they will allow blood to drain out of the vessels and into the cells. The result of this is easy bruising, brain and retinal hemorrhages, bleeding gums and other abnormalities.

Bioflavonoids also in recent studies have been shown to help the blood clot, this alone can be helpful in treating phlebitis and other clotting disorders."

So we shall see how this goes for Jaden and on Saturday, I shall start the antifungal meds on him and see if it helps with curbing his obsessive behaviors. Need to do it pronto before Chinese New Year comes. =)

Multivitamin Forte

I once, had tried giving Jaden the Klaire Labs Multivitamin Forte and he rejected it with so much struggles and tears that I gave up trying.

This time, I am adamant to keep to my 2012 resolution and be a warrior mom and boy, he actually took it in without throwing a great fuss like before. *touch wood, hoping I am not jinxing it by saying it out loud*

To know what it tastes like and why Jaden rejects it with such great struggle, I need to try it myself to know the reason why and yes, it does taste bitter but most good stuff are bitter aren't they?

Well, this time I stuffed the capsule powder into his beloved sweet mangoes, oranges and even tried it with his soy yoghurt mixed with maple syrup to even out the bitterness. 

Although there are a few rejections every single time I bring the thing to his face, he will eventually open his mouth and eats it.

This multivitamin forte is the third item that I had introduce to him and I have been seeing some loose mushy stools. Almost similar to diarrhea but this is not the watery type. Just mushy mustard colour and he also have some well formed ones, just that it is now more to mustard coloured ones compared to his previous black, sticky hard stools that were hard to come out when he pushes. Now, its satisfactory but I am keeping my eyes open as I don't like it when his stool is in a mushy diarrhea form.

Tomorrow, I shall start on his antifungal again. Gonna be on a two weeks course again and hope that his concentration comes back again, or be a lot lot more aware than what he is now.

What I noticed that after taking his B6, he has turned a little more hyper and his stimming behaviors are back. He is starting to spin his cars, so I try to keep them out from sight, a few times I caught him walking on toes. OH NO! but that was only a few times so I am trying to observe longer just to hope those are one time cases. He also, is getting a little obsessive about things so that is a no good sign too. He sometimes do get lost in a daze, the faraway look yet he is still aware of other things and showing me other positive behaviors.

Just today, there was a display of fireworks outside my balcony, and he was actually appreciating the fireworks. We have brought him out to see fireworks before and that just went unnoticed. Today, he asked for more when it ended. He was excited and happy to see the display going off!

Then, now when his diaper is full, and he comes to me and put my hands on his diaper. As if he is trying to tell me that it is time to change his diaper and that he is feeling uncomfortable and he wants a bath YET when after he poos, he still don't show me signs of being uncomfortable. Only once, he ran to me after he pooed because he was feeling very uncomfortable and itchy due to a rash that happened. I did not notice any more of these uncomfortable signs anymore.

Is this the doing of the B6? Cant be, could it? Shall shoot his DAN doctor an email after his 14 days on difuclan.