Andy Cutler Chelation Protocol #Round 6

Since we were away visiting my mother in law last weekend, I did not get to chelate Jaden over the weekend. Knowing that I would be out from the house, away from the boy coming Saturday, I decided to chelate him during the weekday instead.

I started on #round 6 on Monday on Jaden.

We are still currently stuck on DMSA as I am planning to purchase the ALA in 25mg capsules. 

Jaden's yeast attack is quite bad this time round. Although its not attacking in behavioral, its attacking physically on his skin. Itchy rashes are appearing around his thighs, near to his private parts, and sporadic red spots near the bottom.

I am currently trying to keep the rash in control, by applying candelula and diaper cream on him to prevent further rash growth.

He, has been peeing without showing any signs of wanting to go toilet too. He usually will show signs of wanting to pee or he will stand up and take off his own pants but he has leaking pee in class a few times. I wonder if its the cause of chelation or its just him, immersed in work and play that he forgets to quickly signal for toilet time.

I had a missed dosing timing again this round. In fact, it was a bit worse off than previous. This time, it was nearly an hour missed but because of what I was told by other parents, I continued dosing Jaden and went on with my planned 'schedule'. 

Since he did not show any negative reaction and continues to remain all cheerful, calm and better in fact.. I am glad I did not abandon round. If this was my round 1 or 2, I would have most probably abandoned round.

I caught him spitting half his DMSA out too, one time and as calmly as ever, I poured out half the pre-packed DMSA and re-dosed him. Well, 5mg is rather little according to a fellow mother and there should be no harm done compared to large doses of DMSA.

DMSA can be rather taxing on the body organs so I plan to give his body a rest real soon, maybe two weeks to recover while I prep his body with more helpful supplements. 

I just can't wait to tryout ALA, but he might get into a euphoric mode I read... *sigh* Its really true isn't it, no good things will just come without the bad, and the with the bad, comes the good. Depends on which is the greater evil I would rather have ... =)

I nearly got tempted to stop at the 64hour dosing as that was the minimum hours of dosing required but luckily I did not do that. That temptation was so bad as I was really needing the sleep. Must be the time of the month coming for me too, hence the tiredness in me but I psyched myself up, telling me that its only 3 more doses.. 3 more to complete a 72hour round. Since I have already done 64hours, I can hold long enough to last through 72 hours..

Jaden suffered from constipation this time round. 3 days of not pooing at all. Its really amazing where all the waste is stored in that tiny 5 year old body. He farted last night and it was enough to put both Mr and I out, so I can imagine how the smell would be like once I make him poo today, which is A MUST and THE GOAL OF THE DAY for me today.

I have asked some parents for advise on what 'assisting' tools/supps that could help him go and I was recommended the fastest way -glycerin suppository. Of course, there are other suggestions like taking mag citrate instead of mag glycinate, drinking a ripe banana-organic dates smoothie, George's Aloe juice ... but glycerin suppository is the most easily obtained 'tool' for me at the moment so the suppository it is for now. 

Wish me luck that his diaper is big and strong enough to hold those 3 days' waste.

Dividing a 25 mg DMSA

Dividing four 25mg DMSA capsules to last me the 3days of AC Chelation process.

All I need is 19 doses with a spare one, just in case I need them ... 

My style of storing them? Tie 5 folded papers up, and pop them into the fridge until dosing time ... then only I mix them with water / orange juice as when I need them .. as it is advised NOT TO PREMIX DMSA ...

I am going to try ALA soon, maybe this Wednesday as I will be taking a break this weekend and I can't do next weekend so I will be doing the chelation during weekdays. :)

Andy Cutler Chelation Protocol #Round 5

12th October 2012  (2pm) - 15th October 2012  (2pm)

Just that when I thought I had just successfully finished my #round 4 with Jaden and was looking to a few days rest before I begin chelating again, it was Friday again and there I was, sitting at the dining table, cutting up dosages and dividing them onto the folded paper.

I am surprised that I was eager to chelate him this weekend, despite lacking of sleep. The goal I set for both Jaden, 5 years, to see if we can actually feel the light and if God allows, for us to reach that light at the end of this long dark tunnel. 

It gets easier once you pass #round 1 or maybe #round 2, when you finally, somehow created that every 4 hour dosing schedule.

This time round, I had a scare on Saturday morning. Partly my fault for trying to be hero and thinking that even if I clocked in just a few hours of sleep, I would be able to wake up as soon as the alarm goes off and quickly get the DMSA into the syringe and *touch wood* successfully syringing it into his mouth without waking him up. 

It was raining, that Saturday morning. In fact, I think it had been raining for quite some time and everybody knows, its the most perfect weather to sleep in, under the warm covers.. and that was what I did. 

My alarm went off at 950am, and I thought I would just sleep 5 minutes more.. the boy was actually awake by then, and was giggling and playing. 

I really thought that with him moving around the bed like that, giggling away, I would be able to quickly jump out of bed in 5 minutes and get the DMSA ready.

Well, I did jumped out of bed very very QUICKLY... when the clock showed 1040am.

HIS DOSING TIME WAS SUPPOSED TO BE AT 10AM

I TOTALLY MISSED THAT 1/2 HOUR WINDOW ALLOWED ...

so I panic, yet I didn't want to abandon round, thinking that 5mg is still really very little and that I was just 10 minutes late from the allowed window.

So holding that thought, I fed him that DMSA and then panic and stressed myself silly after that, not knowing if I had done the right thing, or I need to abandon the round this weekend because of my greed for 5 more minutes. 

I quickly send out SOS messages to experienced parents, online, sms and calls. 

*phew* turned out that I did the right thing and that my effort thus far was not in vain. 

One that has not gone through this over-sleeping act, will never really be able to phantom that exact feeling I had. 

I thanked the parents who replied my SOS messages.. and found it funny that I could not type " You have no idea what I have just been through.... :)"

I am sure almost every one that replied me had gone through that oversleeping moments and panic as much as I did. This is the type of unnecessary stress I need not, in addition to the lacking of sleep. :p

Seems that Jaden is good on this round too. The obvious signs of him having his yeast flaring up, are his sudden break into giggles and hyperness. *sigh*

Round ended at 2pm Monday and he was pretty fine, throughout the day... and then it all began, the   bad off-round moments.

Started early this morning, when he didn't sleep through the night soundly like what he usually does, waking up at 6am-ish and cried and cried and then played till about 8 before he got a stroke of cane by me and he fell asleep rather fast after that... and the bad behavior mode on, hyperness .. oh boy...

Will most probably be taking a break off chelation for next week and begin the week after... maybe this time I will try using ALA and observe if Jaden will behave much better on ALA alone.

Andy Cutler Chelation Protocol #Round 4

This week, I started my round at 10pm Friday, 5th Oct, after I got a confirmation from Mr that we won't be heading down to Melaka for the weekend to visit my mother-in-law.

I was actually hoping we won't go so that I could really carry out this chelation round. I already had a break with Jaden last week, for his 5th Birthday weekend and also both of us were not really feeling well, with the cough and all but this week, both is fine and knowing me, if I procastinate this week's round, I don't think I will be feeling the momentum to want to carry on as often as every weekend anymore.

*touch wood*

Jaden is rather well behaved on this round. I added in OmegaBrite, that reached from US through a friend to, so on top of the cod liver oil he takes daily, now, its an additional OmegaBrite once a day. I am going to monitor how it goes with his behavior and learning development, and see if I can push it up to 2 Omegabrite a day, then to 3caps daily. Supposedly I will be able to see some results in 2-3 months if taken daily. 

Jaden is taking the OmegaBrite gelcaps. Everything is so much easier now that he can swallow capsules although he has his moods, at times trying to runaway from supplement time but he will still take them in the end after some persuasion. 

" OmegaBrite's is 3x more concentrated than standard omega-3's and highly purified to 90% omega-3. Only OmegaBrite contains 70% EPA (eicosapentaenoic acid) in a 7:1 ratio of EPA to DHA (docosahexaenoic acid), preferred by physicians at leading academic centers world wide. EPA is the body's natural, anti-inflammatory molecule and provides a natural balance to Omega-6 Arachidonic acid. Both are essential for health. One tiny OmegaBrite 500mg softgel capsule supplies you with pure hexane free 350mg of EPA Omega 3 and 50mg of DHA omega 3 with no aftertaste and no drug like side effects."

I am starting to see yeast flareup too, although not very much in behavior, its more like red tiny bumps appearing here and there on random parts of his body. We are still currently on 4caps Nystatin and 4drops of OoO daily when doing chelation.,

Supplements taken during this time round's chelation:-

• Before breakfast - Digestive Enzyme, Candidase, Trienza
• During breakfast - Cod Liver Oil, Omegabrite
• After breakfast - Magnesium Glycinate, CoQ10, Folinic Acid, Ester-C, DMG (w/ folic acid & MB12), P5P, Silymarin and 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• 2.5 hrs later - Zinc Picolinate and Factor 6 Probiotics
• During one of the doses for chelation, I add in 2 drops of OoO together with his DMSA
• Before lunch - Digestive Enzyme, Candidase, Trienza
• After lunch - Magnesium Glycinate, Folinic Acid
• Before dinner - Digestive Enzyme, Candidase, Trienza
• During dinner - Cod Liver Oil, OoO
• After dinner - Magnesium Glycinate, Silymarin, Ester-C, 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• Before bedtime -Zinc Picolinate, Factor 6 Probiotics

I am just wondering if I am giving Jaden enough minerals to make up for the ones he is excreting out with the DMSA...

Jaden has been having a good daily bowel movement, only that at times its nicely formed, sometimes reallyl smelly and mushy soft diarrhea like .. but as long as he does his Number 2 daily, I am pretty fine with it.

After a week of a persistent therapist who insist that he feeds himself his own dinner everytime she is here, he has learnt finally how to feed himself without any help from me. These days, I only sit with him and watch that the bowl of rice does not fall over the table but he is doing the feeding himself. Still messy of course.. which one would find bits of rice scattered all over the floor but I am not complaining. At least he is feeding himself and wants to be independent

Jaden is being much more choosy now, he is starting to make his own choice of what he wants and doesn't want. A good thing yet a bad thing when it comes to avoiding tasks but his team of therapists sure do have a way to make him complete tasks even if he didn't like them.

As for me, he sometimes challenge me, when he is not supposed to be doing something and I say no, he will purposely climb up faster or just not budge from where he is but there is nothing I can't solve with my bestfriend, Mr Cane. I have 5 bestfriends in the house, you see :)

This chelation round ends on Monday, 10pm, 8th Oct. Probably I am going to give him 1/4caps of Adrenergize on Tuesday morning to make sure his mood is stabilize.

By the way, I started gving him 1/4caps of Adrenergize two days before I started chelation with him as his mood was so foul, the Phospatidylserine did not work its magic on him anymore. Somehow, the 1/4caps of Adrenergize worked fine, giving me good boy behaviors. 

Andy Cutler Chelation Protocol #Round 3

Today's #round 3 of AC chelation ended at 10am.

I started my #round 3 @ 10am last Friday.

I was really inspired to carry on doing it this weekend (21st Sept -24th Sept) despite from the negative behavior I had from Jaden the previous week.

Surprisingly two days before I started on this #round3, I discovered that Phosphatidylserine was a magic pill. At least it was to me.

It was prescribed to Jaden by Dr Erwin back in June 2011 but I never got round to giving him that supplement after all the other supplements that I had been slowly giving him on Dr Rina's prescription and trust me, there were just too many that I felt sorry for the boy so I was keeping it at the most minimum and also the ones that are the most important. 

I remembered reading about Phosphatidylserine in the Fight Autism and Win book, that it does wonders for mood. Ok, maybe I am exaggerating about the word wonders but what the book wrote was actually 'improve concentration, focus and mood, modulate cortisol lever @ 100 - 200mg per day and the softgel I had from Dr Erwin's clinic is 500mg (derived from soy lecthin) but it was a risk I am willing to take as the book claims the positive reaction and the note on the bottle by Dr Erwin to me was it was for neurological. So why not, right?

AND... it was MAGIC!

His therapists commented on his behavior for the two days he was on that magic pill that he could sit longer, level of concentration is back and that he is so different from the past two/three weeks they had classes with him. It was a total 360 change in Jaden's behavior. 

I did not give it to Jaden on Saturday or Sunday. He was a bit naughty but nothing that I could not tolerate so it was all good. 

These two days, last night and today, he was rather weepy. On and Off he would cry for no reason but then again, I am also weighing in other possibilities that might not be the doing of DMSA but the food he ate last night. Either the rice last night or the gfcf cake he had for trial run. Going to monitor again tonight for the cake after his dinner because with Jaden, reaction to food allergy is almost instantaneous. 

I am so glad that this round is over and I shall be taking the next weekend off as its his birthday this coming Friday. Now, its back to catching up on lost sleep for me  :)

Developmental Pediatrician -First Appointment

I made the call in February. I was then told, ok, we will slot you in.. the next available slot will be in Oct 29th. 

and my reply was none other than, "Of course, I would love to have that slot!"

It was utmost important that I have Jaden to go have a go-see with Dr Ranjini, who is a developmental pediatrics. I have procastinated on this matter since 2011 when all of Jaden's therapists had asked me to arrange an appointment with her and ask for a proper diagnosis for that ass of a Dr Quack in Taman Desa was nothing but a Quack, a Fraud and best of all, to put a label on him, a conman who is out there to milk money off helpless, desperate parents.

I actually called up Baby and Beyond, the clinic in Bangsar Village II, which Dr Ranjini does go to. I opted for that clinic instead of Sunway Hospital is because, first, its a hospital. Second, its in Sunway and I rather head on to Bangsar anytime. 

One Wednesday, the clinic called us and asked if I would be able to go in the next day as they have a cancellation and I am next on the list. 

I answered YES without hesitating, hear what the lady had to say to me -what to bring (med certs/immunization cards/tests) and then after we hung up the call, I started to panic.

Oh dear! Jaden was not on his best behavior for quite some time now. Its been about 2 weeks since hes on a complete rebel mode, monster mode.. whatever negative mode you can think of, he is that!

but still, I would not give up on this meeting.

We went in the next day, just Jaden and I and after filling up the necessary forms, it was our turn to enter the room. 

Dr Ranjini -first impression of her. She is a very approachable lady, someone whom you will NOT dislike at first sight and is very kid-friendly, somehow a sternness somewhere but it was all good. She asked, she listened, she observed, she tried to engage him in play and work only to be met by a boy who prefers to jump down from her chair, rummage her table instead of the table set out for him. Obsessed with certain puzzle pieces, trying to squeeze into her couch, hopefully he can just blend right in or something like that. 

He was not the compliant boy that I used to know. He showed a bit of temper when asked to do work or coming for tabletime. *sigh*

There are times when he will have his eye contact looking at things earnestly, like when Dr Ranjini took out a ball and played ball with him.. 

After one hour in the room, the boy decided he had enough and opened the door by himself and went out to the reception area by himself.

Luckily there were no other patients or family around, so she allowed him to go out and we carried our conversation by the door, keeping an eye on him while we chatted on. 

What I like about Baby and Beyond clinic is that their main glass door is locked and could only be opened with the buzzer so it really felt safe and that they have a big bus that the children can play pretend as a bus driver, a big play house... Jaden? He was interested in the big glass window looking out and also the brochures. Trust me, when we left the clinic, it looked as if the tornado hit the brochure shelves. 

It was a very reasonable fee she charged us for that 1.5hr session compared to Dr Quack. I really hope karma will hit him back on prowling on parents like us. Dr Ranjini informed us that she will be sending the report in a week or two, so now we are waiting again, for her diagnosis.

Whatever it is, I would think I am alright with it by now as I have come to terms about my son's condition. So with this report, it would only really be a guiding light for me on which issue I would want to address first and work on...

Andy Cutler Chelation Protocol #Round 2

I have to admit that I am rather a procrastinator and I really need to be pushed to do something. Thankfully there is a mother who really pushes me each time I see her to carry out my next round of chelation for Jaden.

After the first successful round of AC Chelation for Jaden, there were issues of tantrum and the worst scenario was the yeast issue then when his ass turned really red with tiny bumps appearing. He seemed to show signs of the itch too but what that put me off was that I had tried so hard to make the butt not be red anymore with the antifungal I pile on him for the past two months. 

We had a anti-yeast protocol and also the anti-parasite protocol while at that and I did see really good results from it. 

After #round 1, it was as if I had never done the anti yeast and parasite protocol before. That was what that dampened my hope but I had always known all along that yeast would be a long fighting battle until we find the right dosage, till then, it will always be a pesky persistent enemy, just not much of a big enemy if compared to the overall big boss -AUTISM.

So last two Fridays ago, at 130pm, I took out 4caps of 25mg DMSA and divided them up into 20 dosages. For an every four hour dosage, 72 hours dosing, 19 dosages altogether. Confused much? :p

I gave him his first dosage of #round2 at 230pm, then 630pm and then we went out and time was not on our side if I were to wait till 1030pm for the next dosing, so I adjusted it and gave him 1/2hr earlier -10pm and from there, all dosings were at 2,6,10,2,6,10 .. you get the drift...

#Round 2 went by really quickly in a way but this was a bad round for us. 

I observed that he was really easily agitated, temper that was really bad and that he showed signs of being aware of the boy, who he meets once a week, lets call that boy, M. 

M has always been playing with his ipad around Jaden, and at time crying or having his tantrum issue but it has never affected Jaden. This time round, both boys were fighting over the ipad, and then Jaden even went and give M a push in the back when M was crying as it affected Jaden and made Jaden wanted to cry too. It was rather confusing on whats happening and I am not sure if its a good or bad thing. 

So I have to conclude that behavior wise on #round 2 was really bad. Mall security guards thought I was kidnapping Jaden, the way he was screaming his lungs out when I have to pull him out from shop outlets that he was stimming in. It was crazy!

Anyway I was glad that the #round 2 ended and he was a bit back to being on a good behavior after the round.

Remember, I only said " a bit ..."

There are new issues I need to find out and tackle them again before it becomes an issue for me. :(

p/s: The pressing on chin and squirting the DMSA in at night on #round2 was proven not to have really be that effective compared to the first time I did it on the repeated #round1.