Andy Cutler Chelation Protocol #Round 4

This week, I started my round at 10pm Friday, 5th Oct, after I got a confirmation from Mr that we won't be heading down to Melaka for the weekend to visit my mother-in-law.

I was actually hoping we won't go so that I could really carry out this chelation round. I already had a break with Jaden last week, for his 5th Birthday weekend and also both of us were not really feeling well, with the cough and all but this week, both is fine and knowing me, if I procastinate this week's round, I don't think I will be feeling the momentum to want to carry on as often as every weekend anymore.

*touch wood*

Jaden is rather well behaved on this round. I added in OmegaBrite, that reached from US through a friend to, so on top of the cod liver oil he takes daily, now, its an additional OmegaBrite once a day. I am going to monitor how it goes with his behavior and learning development, and see if I can push it up to 2 Omegabrite a day, then to 3caps daily. Supposedly I will be able to see some results in 2-3 months if taken daily. 

Jaden is taking the OmegaBrite gelcaps. Everything is so much easier now that he can swallow capsules although he has his moods, at times trying to runaway from supplement time but he will still take them in the end after some persuasion. 

" OmegaBrite's is 3x more concentrated than standard omega-3's and highly purified to 90% omega-3. Only OmegaBrite contains 70% EPA (eicosapentaenoic acid) in a 7:1 ratio of EPA to DHA (docosahexaenoic acid), preferred by physicians at leading academic centers world wide. EPA is the body's natural, anti-inflammatory molecule and provides a natural balance to Omega-6 Arachidonic acid. Both are essential for health. One tiny OmegaBrite 500mg softgel capsule supplies you with pure hexane free 350mg of EPA Omega 3 and 50mg of DHA omega 3 with no aftertaste and no drug like side effects."

I am starting to see yeast flareup too, although not very much in behavior, its more like red tiny bumps appearing here and there on random parts of his body. We are still currently on 4caps Nystatin and 4drops of OoO daily when doing chelation.,

Supplements taken during this time round's chelation:-

• Before breakfast - Digestive Enzyme, Candidase, Trienza
• During breakfast - Cod Liver Oil, Omegabrite
• After breakfast - Magnesium Glycinate, CoQ10, Folinic Acid, Ester-C, DMG (w/ folic acid & MB12), P5P, Silymarin and 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• 2.5 hrs later - Zinc Picolinate and Factor 6 Probiotics
• During one of the doses for chelation, I add in 2 drops of OoO together with his DMSA
• Before lunch - Digestive Enzyme, Candidase, Trienza
• After lunch - Magnesium Glycinate, Folinic Acid
• Before dinner - Digestive Enzyme, Candidase, Trienza
• During dinner - Cod Liver Oil, OoO
• After dinner - Magnesium Glycinate, Silymarin, Ester-C, 2 Nystatin and Calcium Citrate (1/4 teaspoon)
• Before bedtime -Zinc Picolinate, Factor 6 Probiotics

I am just wondering if I am giving Jaden enough minerals to make up for the ones he is excreting out with the DMSA...

Jaden has been having a good daily bowel movement, only that at times its nicely formed, sometimes reallyl smelly and mushy soft diarrhea like .. but as long as he does his Number 2 daily, I am pretty fine with it.

After a week of a persistent therapist who insist that he feeds himself his own dinner everytime she is here, he has learnt finally how to feed himself without any help from me. These days, I only sit with him and watch that the bowl of rice does not fall over the table but he is doing the feeding himself. Still messy of course.. which one would find bits of rice scattered all over the floor but I am not complaining. At least he is feeding himself and wants to be independent

Jaden is being much more choosy now, he is starting to make his own choice of what he wants and doesn't want. A good thing yet a bad thing when it comes to avoiding tasks but his team of therapists sure do have a way to make him complete tasks even if he didn't like them.

As for me, he sometimes challenge me, when he is not supposed to be doing something and I say no, he will purposely climb up faster or just not budge from where he is but there is nothing I can't solve with my bestfriend, Mr Cane. I have 5 bestfriends in the house, you see :)

This chelation round ends on Monday, 10pm, 8th Oct. Probably I am going to give him 1/4caps of Adrenergize on Tuesday morning to make sure his mood is stabilize.

By the way, I started gving him 1/4caps of Adrenergize two days before I started chelation with him as his mood was so foul, the Phospatidylserine did not work its magic on him anymore. Somehow, the 1/4caps of Adrenergize worked fine, giving me good boy behaviors. 

Andy Cutler Chelation Protocol #Round 3

Today's #round 3 of AC chelation ended at 10am.

I started my #round 3 @ 10am last Friday.

I was really inspired to carry on doing it this weekend (21st Sept -24th Sept) despite from the negative behavior I had from Jaden the previous week.

Surprisingly two days before I started on this #round3, I discovered that Phosphatidylserine was a magic pill. At least it was to me.

It was prescribed to Jaden by Dr Erwin back in June 2011 but I never got round to giving him that supplement after all the other supplements that I had been slowly giving him on Dr Rina's prescription and trust me, there were just too many that I felt sorry for the boy so I was keeping it at the most minimum and also the ones that are the most important. 

I remembered reading about Phosphatidylserine in the Fight Autism and Win book, that it does wonders for mood. Ok, maybe I am exaggerating about the word wonders but what the book wrote was actually 'improve concentration, focus and mood, modulate cortisol lever @ 100 - 200mg per day and the softgel I had from Dr Erwin's clinic is 500mg (derived from soy lecthin) but it was a risk I am willing to take as the book claims the positive reaction and the note on the bottle by Dr Erwin to me was it was for neurological. So why not, right?

AND... it was MAGIC!

His therapists commented on his behavior for the two days he was on that magic pill that he could sit longer, level of concentration is back and that he is so different from the past two/three weeks they had classes with him. It was a total 360 change in Jaden's behavior. 

I did not give it to Jaden on Saturday or Sunday. He was a bit naughty but nothing that I could not tolerate so it was all good. 

These two days, last night and today, he was rather weepy. On and Off he would cry for no reason but then again, I am also weighing in other possibilities that might not be the doing of DMSA but the food he ate last night. Either the rice last night or the gfcf cake he had for trial run. Going to monitor again tonight for the cake after his dinner because with Jaden, reaction to food allergy is almost instantaneous. 

I am so glad that this round is over and I shall be taking the next weekend off as its his birthday this coming Friday. Now, its back to catching up on lost sleep for me  :)

Developmental Pediatrician -First Appointment

I made the call in February. I was then told, ok, we will slot you in.. the next available slot will be in Oct 29th. 

and my reply was none other than, "Of course, I would love to have that slot!"

It was utmost important that I have Jaden to go have a go-see with Dr Ranjini, who is a developmental pediatrics. I have procastinated on this matter since 2011 when all of Jaden's therapists had asked me to arrange an appointment with her and ask for a proper diagnosis for that ass of a Dr Quack in Taman Desa was nothing but a Quack, a Fraud and best of all, to put a label on him, a conman who is out there to milk money off helpless, desperate parents.

I actually called up Baby and Beyond, the clinic in Bangsar Village II, which Dr Ranjini does go to. I opted for that clinic instead of Sunway Hospital is because, first, its a hospital. Second, its in Sunway and I rather head on to Bangsar anytime. 

One Wednesday, the clinic called us and asked if I would be able to go in the next day as they have a cancellation and I am next on the list. 

I answered YES without hesitating, hear what the lady had to say to me -what to bring (med certs/immunization cards/tests) and then after we hung up the call, I started to panic.

Oh dear! Jaden was not on his best behavior for quite some time now. Its been about 2 weeks since hes on a complete rebel mode, monster mode.. whatever negative mode you can think of, he is that!

but still, I would not give up on this meeting.

We went in the next day, just Jaden and I and after filling up the necessary forms, it was our turn to enter the room. 

Dr Ranjini -first impression of her. She is a very approachable lady, someone whom you will NOT dislike at first sight and is very kid-friendly, somehow a sternness somewhere but it was all good. She asked, she listened, she observed, she tried to engage him in play and work only to be met by a boy who prefers to jump down from her chair, rummage her table instead of the table set out for him. Obsessed with certain puzzle pieces, trying to squeeze into her couch, hopefully he can just blend right in or something like that. 

He was not the compliant boy that I used to know. He showed a bit of temper when asked to do work or coming for tabletime. *sigh*

There are times when he will have his eye contact looking at things earnestly, like when Dr Ranjini took out a ball and played ball with him.. 

After one hour in the room, the boy decided he had enough and opened the door by himself and went out to the reception area by himself.

Luckily there were no other patients or family around, so she allowed him to go out and we carried our conversation by the door, keeping an eye on him while we chatted on. 

What I like about Baby and Beyond clinic is that their main glass door is locked and could only be opened with the buzzer so it really felt safe and that they have a big bus that the children can play pretend as a bus driver, a big play house... Jaden? He was interested in the big glass window looking out and also the brochures. Trust me, when we left the clinic, it looked as if the tornado hit the brochure shelves. 

It was a very reasonable fee she charged us for that 1.5hr session compared to Dr Quack. I really hope karma will hit him back on prowling on parents like us. Dr Ranjini informed us that she will be sending the report in a week or two, so now we are waiting again, for her diagnosis.

Whatever it is, I would think I am alright with it by now as I have come to terms about my son's condition. So with this report, it would only really be a guiding light for me on which issue I would want to address first and work on...

Andy Cutler Chelation Protocol #Round 2

I have to admit that I am rather a procrastinator and I really need to be pushed to do something. Thankfully there is a mother who really pushes me each time I see her to carry out my next round of chelation for Jaden.

After the first successful round of AC Chelation for Jaden, there were issues of tantrum and the worst scenario was the yeast issue then when his ass turned really red with tiny bumps appearing. He seemed to show signs of the itch too but what that put me off was that I had tried so hard to make the butt not be red anymore with the antifungal I pile on him for the past two months. 

We had a anti-yeast protocol and also the anti-parasite protocol while at that and I did see really good results from it. 

After #round 1, it was as if I had never done the anti yeast and parasite protocol before. That was what that dampened my hope but I had always known all along that yeast would be a long fighting battle until we find the right dosage, till then, it will always be a pesky persistent enemy, just not much of a big enemy if compared to the overall big boss -AUTISM.

So last two Fridays ago, at 130pm, I took out 4caps of 25mg DMSA and divided them up into 20 dosages. For an every four hour dosage, 72 hours dosing, 19 dosages altogether. Confused much? :p

I gave him his first dosage of #round2 at 230pm, then 630pm and then we went out and time was not on our side if I were to wait till 1030pm for the next dosing, so I adjusted it and gave him 1/2hr earlier -10pm and from there, all dosings were at 2,6,10,2,6,10 .. you get the drift...

#Round 2 went by really quickly in a way but this was a bad round for us. 

I observed that he was really easily agitated, temper that was really bad and that he showed signs of being aware of the boy, who he meets once a week, lets call that boy, M. 

M has always been playing with his ipad around Jaden, and at time crying or having his tantrum issue but it has never affected Jaden. This time round, both boys were fighting over the ipad, and then Jaden even went and give M a push in the back when M was crying as it affected Jaden and made Jaden wanted to cry too. It was rather confusing on whats happening and I am not sure if its a good or bad thing. 

So I have to conclude that behavior wise on #round 2 was really bad. Mall security guards thought I was kidnapping Jaden, the way he was screaming his lungs out when I have to pull him out from shop outlets that he was stimming in. It was crazy!

Anyway I was glad that the #round 2 ended and he was a bit back to being on a good behavior after the round.

Remember, I only said " a bit ..."

There are new issues I need to find out and tackle them again before it becomes an issue for me. :(

p/s: The pressing on chin and squirting the DMSA in at night on #round2 was proven not to have really be that effective compared to the first time I did it on the repeated #round1.

Swallowing capsules

I can proudly now say my almost 5 year old can swallow capsules. 

Yesterday, while we were all ready to have our dinner in Melaka, after paying my mother-in-law a visit, I decided to try my luck by just giving Jaden his digestive enzyme just like that, without having to insert it into bits of oranges (like how I do it at home usually) and he surprised me by just swallowing it and quickly sipping his water after that.

So, to test Jaden further that it is just not a coincidence, I tried again with his Trienza in between his meals and he did it again, and again for other supplements. 

Conclusion, YES!! Jaden can swallow capules now and these capsules are exactly small or tiny. You can imagine how happy and proud I am of Jaden.

BUT this success did not come easy.

We started our biomed journey back in Nov/Dec 2010 and the first year we were on biomed, it was a battle each day trying to get those supplements into his body. Both Jaden and I were both constantly crying and fighting. Him crying because mummy was being a crazy lady forcing him to drink up all those bitter stuff and mummy crying because Jaden really put up a good fight and daddy was on his side instead of mummy's. I was called crazy, I was accused of traumatising my own son ... *sigh* yes, I have been through lots of those moments but I stuck through my own method and look at us today.

I have to admit, it had never been easy.

I was a very forceful mom. I would cane him until he finished up the drink, I would shove the pieces of fruits with half the capsules in and block my palm at his mouth so he can't spit it out and have to take it all in. Yes, during those days, he gets caned quite a lot... and as he grew up, getting used to the idea that if I take it all in without a fuss, it would be all over in a minute or two. 

First I started out having to open up all the capsules of the supplements and mixing it into his drinks. Fruit juices or his potato milk to mask the flavor although I do have to admit that some of these supplements are just plain nasty and imagine he has to drink it all up. 

Then I started sprinkling out some of his supplements into his bits of fruits such as persimmons, mangoes, watermelon. Sweeter fruits to mask the overall bitter taste. Sometimes it works, sometimes no and he learnt that these fruits are 'bitter' too and he started to refuse taking them.

I figured out its time I have to try another method to get it all in again. I almost gave up after a bad fight over the supplement intake issue, and I gave it a rest for quite some time before I told myself, its now or never for Jaden to recover. If its not me to do all these bad cop job, who else would be willing to, right? 

So I tried again, this time, I only divide the capsule into half, their contents still in the capsule and I stick them into fruits like bananas and mangoes and mandarin oranges. This, I only started doing back in December/January of 2012.

It worked fine until he decided that he didn't like them in his bananas. Maybe that needs a little effort more in swallowing them as he needed to chew a bit and that made him bit into the bitter contents. So I stuck with mandarin oranges which he just can't simply refuse. 

From there, it was the whole capsule in half a slice of mandarin oranges and then I break the slice of mandarin oranges into three parts and one slice of mandarin oranges equals to three different capsules. 

and today, well, no more mandarin oranges !! YAY !! 

Most probably I would only let him swallow on the whole and plain like that when we are travelling but when we are at home, I am still going to give him with the bits of fruits so that he won't get scared of swallowing capsules just like that. HEY, even I get scared when I see 8 different pills staring me in my face daily.

I am just thankful and grateful that 'today' came. =)

Off rounds

Jaden's mood was pretty unstable.

He would have an upturned mouth, quivering ready to cry ... refusing to do his work and screaming his head off at his therapists. Lots of pinching, stubborn and the frequent pee-ing too. 

It seems that he has more pee than usual and have to go rather frequently, something which does not happen often. Its almost like he could not control keeping it in until he reaches the toiletbowl/potty. 

Of course, that took place yesterday after his last dosage of 5mg DMSA at 330pm. 

I also noticed that he has a fiery red ring around his anus, which I had made quite a big effort in clearing it all up before I embarked on this chelation journey and here it is, flashing me in the face the bright red ring! 

This is due to yeast usually, and that I can totally understand as he has been giggly during the chelation weekend. So, now, its back to combating yeast again before I go on my #Round2. 

Jaden has also been teeth-grinding these two nights, and extra loud last night. So I am going to retain his double calcium intake for about a week and see if the teeth-grinding issue would go away. 

There is a belief that if the kid is heavily metal-toxic, they tend to do better on rounds and then get a little cranky when they come off the rounds. So, no prize for guessing which group Jaden belongs to ...

Poo, however, was good so far. It should be in the number 3 category of the Bristol Stool Chart. *phew* Its always better out than in -constipation can make Jaden a difficult boy to deal with most of the time. 

Andy Cutler Chelation Protocol #Round 1

Finally I summoned enough courage to re-start on #round 1 chelation for Jaden. 

Took me over almost a month and more to get my ass on dividing the doses, prepping my body and mind to be mentally strong enough to go through the difficult two dosings of the entire process. 

I was not worried about Jaden not wanting to take his doses when he is awake because I feel by now, after two years of asking him to come to me and getting supplements, medicine and bitter stuff shoved down mouth, he has learnt that its easier to quickly swallow it than to put up a fight with me. He never wins at that. Maybe not now when I still have the upperhand in parental control.

Like I mentioned earlier in this post, because we are just starting on our very first round, Jaden will only be taking 5mg per dosing every 4 hours for the next 72 hours. That would add up to 18 doses altogether. 

Minimum advisable hours to do would be 64 hours each time on a round. That is personally up to the parents as these kids are usually school-attending children and they have no choice but to do that. However, the ideal recommended hours would be 72 hours, and that is what I am doing with Jaden.

I have got my hands on a 25mg DMSA.

Many would be scratching their head over DMSA right now, aren't you? DMSA stands for Dimercaptosuccinic Acid. I am not going to explain further as there is always Wikipedia to do the job but to summarise it, its a chelating agent where it helps bind toxic metals in our heavily metal laden children. Research shows that most of the autistic (spectrum) children do have lead or mercury or both poisoning in their blood level. It is like detoxing our children from lead, mercury and some, even arsenic. 

Chelation is not a one off thing as these toxic metals do not get in there in a day, but was accumulated since don't know when so this chelating process would also take time to push these toxic out of the body. There are cases where some are completely 'recovered' and some, reaches a stage where nobody would once believe they were autistic and this is what I am aiming for. Of course, RECOVER is on my mission list, be it that this procedure might take a few years but if there is light at the end of the tunnel, I will march together with Jaden towards it. 

I would most probably do at least 5-10 rounds with just 5mg DMSA and then increase another additional 2.5mg to the 5mg. That is the step to take, it seems, as written in my book of AC chelation bible book -Fight Autism and Win. 

Then there will be ALA adding in, which ALA crosses the brain barrier and bla bla bla, but that is another story to tell next time when I start adding ALA to his DMSA but for now, lets stick with DMSA first. 

SO the story is...

We re-started our #Round 1 AC (Andy Cutler) chelation protocol on Aug 3, 2012. 

The first two days were a breeze through as I did not see any meltdowns, signs of fatigue or yeast flare-ups. DMSA are known to trigger yeast flare-ups despite one is on a anti-yeast protocol before, battling out the yeast. 

Jaden had two poo incidents, once on Fri evening and Sat morning, where it was mushy, mustardy, diarrhea-like, just non-watery though kind of poo. He took another dump on Saturday evening and it was well-formed by then, and it was in a rather healthy looking color -based on Bristol stool chart. I bet you didn't know that there was such a chart, didn't you? So did I, until now.

Yesterday, Sunday, nonsense started. In the evening, after dinner, Jaden went into his giggly, euphoric mode. That was when I started to panic. Yes, yeast army has arrived and started partying. His poo? Well, it came in two colors, well formed but one was nearly tar-liked in color. That could only mean bad news, indication of something not right inside there.

Other than being giggly and all last night, he did display some positive signs such as being a calmer boy than usual, much cheerful. 


Oh, I forgot to mention another downside, he was stimming much ore, flapping his hands and that also boils down to it being caused by yeast. YES, we parents like to blame em YEAST !!!

Before I started out this round, I was only scared of the two dosings that requires me to give it to Jaden when he is sleeping. Remember how I failed the last time round because he put up a fight with me the last time round on the second night of dosing and I have to abandon round? 

Well, it seems by my endless effort trying out various ways (during that one month break), I practiced trying to open his mouth when he is sleeping whenever I could and FINALLY, I think I may have found THE SECRET to it, without waking him up and also getting those doses in. I shared it with one parent I met up last night and she text me late last night saying it worked with her son too. 

*PHEW*

BUT do let me stress. Every kid is different. They have different sensitive issues, for Jaden, it was his lips. If you touch his lips, it will stir him up from sleep and make him angry and that was what that caused my previous abandoned round. 

Speaking of detoxifying this metals out from our children, some minerals get depleted too. That is why, during chelation, we crank up on their supplements. Jaden has to take double of his zinc, magnesium, milk thistle (just because I am a scaredy cat and wanna protect his liver all I can), calcium and probiotics. 

This is a 3days on a round, rest for 11days and then continue again on the next round. Each round is 72 hours, you should have get the idea by now though. Why rest right? This is because we need to let their body recover from all these detoxifying, build up again on their immune system and then go on a fight again. Even soldiers need to take a time out, to replan, regroup and refill their ammo before they can fight, right? Just like detoxifying, some will purge it out but you don't expect those purges to go on 24/7 for the next 365 days, do you? You would be jelly by then. So its basically the same concept. 

Some children's neutrophils are also lowered while on DMSA, so they need time to get their neutrophils to a safe range before they begin their battle again. That is why there are some that only does one round of DMSA once a month for their children. Its not about how fast you go, and that will give you success. Its how steady you go, how you do your rounds based on each child's health rate. Its a fight of course, a fight with time.. and that is all.. but aren't we all fighting against time for everything? Just that, this is rather a tough fight as each child's situation is different from another. Some might just need less than 100 rounds and they could be saying "Hallelujah", some may need more time and rounds. 

Whatever it is, the motto is never to give up ... 

One and half hours more to go before his last dosage of DMSA for this #ROUND 1.. and I can successfully say, 

YES I COMPLETED A ROUND ON MY BABY BOY !!!!! 

and damn, I deserve a good glass of wine to celebrate ! :)

p/s: This would mean I took another baby step forward. YAY !!!!!