Hiatus

I have not been updating quite as often as I thought. Such procrastination from my side.

I have already been down to Singapore  trips to consult with Dr Erwin Kay and a lot more of supplements have been prescribed but me, being the worrisome mother held back quite long on certain supplements.

Sometime back late March till early April, we noticed that Jaden was stimming back again and his OCD-like behavior in opening and closing of cabinet doors got to us. Dr Erwin then prescribed another round of antifungal (drug-based) Nizoral and Bactrim which Jaden is supposed to go on a 10 day course but after asking around other parents, I decided to wait for a while and see if Jaden will improve without those meds. Instead, I cut down on certain foods or put in less of whatever I use to cook.

True enough, his stimming and OCD-like went away in about a month on his own, and that, put my heart at ease for a while as I was so worried that the drug-based antifungal might affect his liver.

And then before that, when I was down in January earlier on, Jaden was given the green light to start his AC protocol chelation but me, such a procrastinator, did not manage to start chelating him even after getting back the urine test kits (before and after to test for metals and minerals).

So now, this trip, last weekend I informed Dr Erwin about Jaden's status -in ABA, normal days and how he fare on his basic routine supplements. Seems like Jaden is showing much more awareness in terms of emotions and learning skills although he still has his temper right left and center.

He seemed to be eager to imitate his father but attempting to do the flying kiss action and also trying to drink from a bottle (coke bottle kinda bottle). He seems to think whatever his father does is fun but not all the time.

Jaden also seemed to be attracted to newspapers, namecards, namelist - practically anything with small alphabets, numbers and objects which he likes to compare and observe. He is still non-verbal until now but making more attempts in talking in his own language -displaying his happiness and of course, displeasure.

Jaden fell sick about three weeks ago and he shed a few kgs off during the sick period. It was rather nasty as I have not seen him fall sick like this before. It comes and go and it came back, with runny nose and cough. I was so afraid that he might get a sore throat that was as bad as me so I made him drink lots and lots of water.

So for now, we will continue with the chelation protocol but this time round, it would be the Calcium Disodium EDTA suppository form. As most parents would have read up about how two kids in United States of America has fallen victim to the wrong EDTA prescribed, I double checked and understood that I have to feed him more calcium-mag as well as when the body is chelating out the metals, they also chelate out certain good minerals so it is very important to double up his supplements.

To kick things off, I will probably introduce TMG, OSR and milk thistle to the supplement list, followed by calcium-magnesium then the chelation which I hope to start at least by next week Monday.

Since I came back from Singapore, 18th June, after an overnight trip there and also paying a visit to fellow mummy Anna in Singapore, sharing experiences and she showing me how her VABA therapy is done for her son, it sure was one eye opener. She is really doing great, the way she diligently updates her son's therapy tools, being strict on every organic and gfcfsf meals. I bow my head in respect as I think I failed in some areas.

Jaden was feeling all moody and tired all the time too eversince my trip. It was as if he has not recovered fully and would sleep till really late into the afternoon. He looked so sad that I decided enough was enough, time to ask experienced parents out there for some advice and quickly, putting their advice into action. True enough, by nightime and the next day, Jaden showed some positive results. No longer feeling lethargic although he would still nap for about 3 hours but at least he seems much more cheerful, back to his smiley cheeky self.

So what was the trick to all of that from my side when Jaden is feeling all down, tired, no mood to do anything or deal with anyone -its pumping him with more fruits, probiotics (2 caps of Therbiotic Complete and Detox / twice daily and 2 S.Boulardii at night once a day), double up on zinc, instead of 2 caps daily, i turned it into 4 caps daily, his digestive enzymes and interfase, I gave him two DE intead of one each time and 2 caps of interfase too, so it brings it up to 3 times a day, meaning 12caps a day and of course, his normal routine Taurine, Chromium Picolinate, Prothera Methyfolate and cod liver oil. Some parents have advised to give more cod liver oil but I think a spoon a day at the moment is sufficient enough.

It was more to basically more fruits too and water and sitting with him, comforting him. Well, he was so sticky to me that it was really surprising to see him reject his father. Nobody could understand why but he never let me out of his sight and stuck really close to me at all times.

Now that he is feeling better and back to his normal self, guess its time I put my procastination behind, start typing out a whole new list of supplement list and arranging supp feeding time for Jaden. 

IgG test results

Jaden's IgG test results came back to us this morning.

As suspected, he is highly allergic to Casein, milk, whey, yogurt (bovine-derived), gluten, wheat, chicken eggs.

Moderately allergic to oysters so that is also out of the menu.

Then next comes, coconut, grapefruit, orange, almond, soy bean, sea perch, mustard and of all things, white rice. Dang!

Things to look out for will also be chicken, garlic, tuna and vanilla beans.

So all those mentioned in the first line would definitely be out of his menu while those on the second, can be taken occasionally but if his condition does not show improvement or *touch wood* shows regression, then we have to strike it off the menu too.

We have started giving him his cod liver oil and lets just say, it has never been a pleasant experience giving it to him. 5ml in a syringe, and holding a very strong boy down just don't work when the liquid inside the syringe ain't something that he likes to eat or will willingly down without a fight. Oh yes, he sure is a fighter! Lets just say all three of us smells like a fish after. Very smelly fishes!

Today should be our fourth day on the cod liver oil. I am still trying to look out for his body reactions to the cod liver oil. So far so good so next, would probably be the digestive enzymes. Then give him another 4-5 days to check for body reactions and then the probiotics. 

Jaden had fever since last Tuesday, got better the next day but still going warm and then back to nornal and suddenly he was back burning up on Saturday night. I had to give him a suppository to kill the fever off, which it did. *phew* Now, what is left is the annoying cough, phlegm and runny nose.

It was our first time to the paed this year I think because when his paed checked Jaden's last record, it was last year September or something like that. He asked us how was Jaden's speech coming along when we told him that Jaden is actually diagnosed with ASD and the paed looked at me in bewilderment. ASD? Heart problem? Oh gawd! I quickly corrected him and said it was ASD for Autism Spectrum Disorder instead. I later found out what the other ASD meant -Atrial Septal Defect.

Well, Jaden being sick gave him all green light to ber-maharajalela in the house and I think he thinks it is his rights to act this way even when he has recovered. One week of bad behavior was getting on my nerves so today I showed him the cane when he was being cranky and tried to kick me. I only showed him, not give him... next round probably. 

He was never really difficult for quite some time now and now, I am not very sure if its the fever talking or the die-off reaction from his casein and gluten withdrawal? So all I am doing now is monioring, logging each day's behavior, his food intake and well, the cane from time to time to remind him that I am still boss afterall in this house.