Today certainly got both my eyes opened wide as the little gush of pee coming out from Jaden was bright florescent yellow.
You did not read wrong. It was the same coloured as those traffic policemen's jacket. That was the colour.
Looked kinda alien to me, if you ask me.
Anyway, since today was the very first time I introduced his natural antifungal to him, Oil Of Oreganol (OoO) and of all the other supplements that he has been downing currently had not shown any difference in pee, so I guess this is the one that turned his pee into such a colour.
I did asked other parents if they experienced it, but I got a reply that it might be due to Jaden not drinking enough water.
Therefore, I shall check again tomorrow after I pumped him with lots of water.
Currently, we are doing 2drops x2daily of OoO. The smell is very strong, so I am guessing the taste must be really strong too because Jaden cried after taking the 2drops I dripped into his piece of orange.
He was ok when I dripped a drop each on to his meat though. I think I should just stick to drip OoO into his food instead of fruit instead.
I am not sure if its the Vitamin B that is making him a little hyper than usual or its the OoO doing its stuff, as his therapist commented that hes more jumpy today. As in he is jumping more than usual (one of Jaden's stimming actions) but temper and mood wise, Jaden is pretty well behave so well, he can go jump all he wants right now. As long as it does not affect any other area in him. So fast, already a die-off reaction? OoO that strong to him?
I was advised to keep the hyperness at bay, I need to top him with Folinic Acid which I am already doing that. I give him Kirkman Folinic Acid 800mcg once a day. Wondering if its already enough or should I give twice daily instead? Shall consult Dr Rina when I see her in two weeks. The experts say folinic acid is better than folic acid for some people. Well, the proof is here, as excerpted from the Kirkman product facts, "In some individuals, the use of natural folinic acid may be more beneficial than folic acid, because folinic acid already has attached four hydrogen and one methyl group, thereby shortcutting the complicated biochemical process. For that reason, some doctors are recommending folinic acid instead of folic acid supplementation."
Jaden is supposed to do epsom bath but I have yet to get him a big tub to soak himself in it. Toilet is a bit too small but well, since this is something that has got to be done, I have to find one that fits.
Speaking of things that I am worried about right now is in regards to his most recent blood test. His urea seems rather dehydrated. His DAN doctor mentioned that either that he was not drinking enough water or that might be a problem with his protein metabolism.
Do you know what protein metabolism disorder would mean to me?
It would mean that his body is unable to break down protein, therefore the ammonia pileup is going to be dangerous. It could mean liver failure, the liver failing to do its job to detoxify. ??!!!
Protein metabolism presents some serious waste management challenges for the body. When protein is broken down, one of the by-products is ammonia. Ammonia is toxic, so our bodies have elaborate systems for getting rid of it. Most of the detoxifying work falls to our liver. There, ammonia travels a multistep pathway featuring five enzymes that turn it into urea, to be excreted in urine. People with rare genetic deficits that interfere with the urea cycle often die in childhood. Other mutations, though, may be responsible for some problems in adults, reports the May 2007 issue of the Harvard Health Letter.
One in 8,000 American children has a genetic defect that causes one or more of the enzymes involved in ammonia processing to be defective or scarce. As these children start to consume protein, the ammonia begins to pile up. Treatment includes protein restriction, medications that sop up extra ammonia, dialysis, and possibly liver transplant. The death rate is high.
Urea cycle disorders are viewed as rare and primarily pediatric conditions, but there might be a whole range of unrecognized, genetically determined problems with protein metabolism experienced by adults. Some people may have mild mutations that compromise a gene’s function and cause slight symptoms. This may explain why one person eschews meat while another loves nothing more than a steak meal. Defects in protein metabolism may also explain why some people have bad reactions to high-protein diets like the Atkins diet.
Did you read what I read??
THE DEATH RATE IS HIGH !!
Not only that, his eosinophil counts are quite high.
and the risks is crazy, making my heart skips a beat each time I read it.
High numbers of eosinophils (eosinophilia) are usually associated with allergic diseases and infections from parasites such as worms. A high eosinophil count may be due to:
Crazy isn't it? At only age 5 ... oh boy, I am going to start by giving him his de-worming medicine which I bought from Humaworm. From there, after finishing the antiparasites, I shall do another re-test and more test if that means I can prevent or combat whatever that is coming Jaden's way. Nothing is going to stop me from making him as healthy as he can get.
*sigh* Where did I go wrong? :(
